Can't fix cancer with a band aid!!!!

[sevenofnine]

I actually am a cancer survivor 28 years as a matter of fact.

A year out of my life, four rounds of chemo, and an operation.

not familiar with your situation, so I won't bother to give any specific advice,

but cancer is pretty common. almost everyone will get it if you live long enough,

survivor rates are actually getting better, quite a bit better actually. so don't knock the docs and science,
some cancers were pretty much a death sentence like lung cancer ten years ago. now the odds are maybe fifty fifty.
three people I know have been diagnosed and treated with different cancers in the last two years. all of them have a good prognosis

my advice is do your research, medical research don't let the doctors fuck up, there is standard protocols and treatments.
and yes doctors fuck up, I was mis-diagnosed and even one of my chemo treatments was messed up in some minor way,
so stay on top of your treatment, if nothing else it will make the doctors stay on top of things.

some one died I know close to me, because the system fucked up. no one is perfect they make mistakes.


any thing you do for your self as in extra, precautions herbs whatever, make sure it doesn't interfere with proven medical treatments.
that is the best option, the only option,

steve jobs and countless others believed they could diet take herbs and all this fucking shit and cure themselves.

hangin there,

its funny but at some point in my cancer year, I just said fuck it, and went through it all like I was watching a movie, detached interested but yet apart from it all.
don't get too fucking high, don't get too fucking low,, one day at a time.

 

[johnsmit]

Thanks 7 of 9.
As it stands right now I have to say that I am fucked.

I have had my little friend, not, growing nicely on my chinfor 9 month or so . Doubling in size every 2 months
..When I went to the Doctor 4 months ago they still though it was just a cyse , and so 2 months later when a dermatologist say it cancer it still Toke another 45day befor I was told it is stage 3 melinoma. Of course then things moved alot quicker and I had an apointment to have it removed in 5 days. But when they saw it was a lot larger then what they could do in a day surgery. At that time they wanted to have a operation that will remove at least half the tissue of my chin and lower lip ,down to the bone. And limp nod. Of course they would not know until they started cutting.
It was the only option they offered and did not what to entertain any other ideas.
I allowed them to put me on the waiting list for the operation which could be any time in to Sept.. I am not happy about even having the operation because there is no certainty that they will get all the cancer And that I won't be fighting it done where else in my body .That is the reality because I have had it now for 9 months with no Profesional treatment.

I asked to to see an oncologist and have that apointment now booked for August 9 with a bone scan and blood test being done before.
As of now July 30 which is 15 days after the first visit to hospital to have it removed , the cancer has grown another 30% or more and I get pain through out the day and limp nod swelling off and on.
The likely hood that it matastised is "yes ". I guess the blood test and bone scan will confirm that.


At that point is an operation to that will disfigure and cause other problems me even worth it, if I will be trying to survive cancer in other organs
Other then reducing the mass of the tumor and stop the cancer from feeding off itself I don't care to go though with any more pain or suffering then I have to when it all woukd means it is terminal.

Of course I still can keep my quirky since of humor when looking at what's happening to my life.
And I think about my growing friend and how it does not know that in it striving to grow and survive that it is killing the host and will bring about it own death too.

If only it understood that we could Coe exist. It just has to be happy with a little place on my chin !..Well not really lol.

The Stars Trek Next Generation sceans that comes to mind is when Redick an alian that Toke over the body of a star fleet member and was gradually taking over star fleet with it little parasites in other star fleet commander is finally confronted by Picard and Ricker.

And he snarls out "...I am here for peaceful coexistence.."
At which point he is blasted with 2 phasers,his head explodes ,to reveal the alian in side of him And then they just burn him down to nothing..
Exactly what I would like to do to the cancer

 

[clu]

Good God, man. So sorry to hear this.

Maybe there are still options? Perhaps some two-tier medical system insight is in order? Fancy a trip to the US?

 

[johnsmit]

That the other side on having cancer and getting the best and most up to date treatement avalable.

They say we have some of the best cancer treatment facilities in the country right here in victoria and Vancouver. And I guess I'll find out if they offer up some of the new inavasions in treatment.

Of course the other side is I can't afford to be off work I just live from pay check to pay check..so I don't need that stress on top of fighting cancer.
I am hoping that I can qualify for some medical disability when I can go to work because of treatment. But it would be better to avoid debilitating treameny and side effects from radiation or chemo.

That not any better for the body and recovery either.
I won't be making any trips down to the USA.

 

[Sonny]

This perhaps points to the benefit of getting a "paid service" MRI at one of the private clinics.
If folks are over 55 or 60, and have $3k to spare, a full body scan can be had within days, with analysis shortly after.
Preventative maintenance. Costly, but perhaps well worth it to know what the body status is.

Best wishes to you John.

 

[johnsmit]

I'll probably get an MRI at some point if they think it's has spread.
Getting a bone scan at end of week.
Of course none of this is treating my cancer .

 

[johnsmit]

Well I have to hange tight to every positive news.
The bone scan showed everything normal for now.

I found best thing for me is to be able to talk about what happening and how I feel bout what they might do your could do, instead of just going over everything internally .
Thinking sbout it to much does not change what will be happening .
But sayong what I'll accept or won't accept as treatment helps get some feedback.Ultimately I'll have to make a chose that I'll live or does with.
So far it just me and what natural treatments I have asimulated as part of my protocal. Not sure if any of them are helping at this time .r

 

[johnsmit]

Just an up date of sorts.. nothing much happening on the treatment side my friend is still growing .

As for bone scan ..normal..An ultrasound of my liver and stomach normal..and nothing in the blood tests.

I am going to see .some one about radiation in Sept. And I have a pet scan booked for Nov. along with more blood work.

I can't say it a great sinaio because it going on 9 months now and I am feeling the effects of my body dealing with cancer.

And I don't know if any of the herbs or canabisoil is doing any thing. As it is I can't take very much of the canabisoil with THC in it .because I get a funny high that does not let me sleep and I can't barely keep my balance to walk.
It allso hangs on in to the morning till 7 o'clock or so
and I can't be high when I drive.
I just don't like the feeling.of being out of control.

 

[johnsmit]

I allso looked up how introverts handle cancer and we do need to talk about it but we are more comfortable talking to anonymous strangers on review boards and such then counselors athe cancer clinic..

In my case I don't have many close friends and I don't see them that much . As for the few women I know from in the business I can talk a bit about it but they really don't want the downer

 

[FreeG]

So what's the latest JS? Any of the THC advice from others helping you out?

 

[johnsmit]

I don't know if any of it has helped slow the cancers progression.
The canabisoil and therocumilun and grape seed exstract is all I am using.No recommendations for treatment from the oncologist other then cut it out and I don't have any date for that.Also have an apointment for radiation evaluation.

 

[johnsmit]

The thought of death is not the easiest to accept all though all I am doing is living one day at a time , I am not able to do what ever I want . From the treatment side of things I still have not got any treatment of any kind from the cancer center doctors although I have an appointment to see if they can do radiation, I am not hopefully about that. The tumors are still growing and are about the size of half a golf ball and take up half my chin.
I also been feeling the effects if my body struggling to deal with the physical changes taking place and my immune system try I g to deal with the cancer..All though I don't know if my immune system is even able to get at the cancer.
Also it starting to ach through the day and night ,still bearable but it will only get more pronounced.

As for the canabisoil I will keep trying that even if it just a plasepo and makes me think no am doing something

So if I real only have death to wait for in a few weeks or months .I should try to have some fun for my self although I can't afford to do much .Between canabisoil and fresh fruits and vegable which are costing me a good coin I still have to manage rent and phone and payments on a taxe bill ..

As for a will , I have not made one and I am not sure if my sister wants the burden of dumping my junk or what part of my art work she would keep or interested in.Most of this only means something to me..And the fact that I don't have a funeral or plot arranged or the money to pay for it .
I don't think she would be happy to put out the thousands of dollar for that either. In some ways as my only relative she is responsible for it .But if I don't make here the exec of the will ,The government might for the bill for a coffin and cremation. Not sure what will happen and I should talk to her and an notary about it.
I have to admit it not easy to do.

 

[johnsmit]

Just on a lighter not .
The fun I can think of in voulves all the women I have loved before,Well had sex with before.

But I only know 6 of them at this time and they are not all in the escort business any more:-(.
But 4 Are!!!
That would be my first 4 girl even though I have the memories of a 3 some from Mackenzie back in 2011.
Of course I can't really afford that unless I was departing this earth the next day .Yes a little macabe but we all have to have out death fantasy

We just won't mention the elephant in the room lol.

 

[Ala]

Hey John; I had the same type of cancer, Stage 2 though.
Don't worry brother, just go and get her out, couple radiation sessions and 5 years of monitoring. Just take care of yourself and have fun!

 

[johnsmit]

Mine is far past stage 2 .
They said stage 3 two months ago. And considering has almost doubled in size since then. And back then it was wait for an appointment for the operation .that did have an opening on the Aug.4 which I could not do and I don't want 3/4 of my chin and lip removed .also no assurance that the cancer will be gone.

So don't think it is going to be a good out come.

 

[hopalongreen]

Mms. Jim humble

 

[Asian88]

John, search "immune therapy". It's a new way to treat several types of cancer and has FDA approval. Unfortunately Canada is a bit slow in this realm.

 

[johnsmit]

Yes I heard on immune ttherapy. And there is genetic therapy and targeted therapies also .
But none w
Have been offered. Most don't exist in Victoria.
Radiation has been ruled out .
All They want me to do is Have the operation, which is not assuered to stop the cancer either.
It has been another 2 and a half months the tumors has doubled it size.

 

[Asian88]

I'm an old school Chinese. From what I see in my family who died for cancer, big operation is the last and worst solution. Leave it there they might have like 5 more years of acceptable life but once they did it the torture started and seems died earlier. Immune therapy is not available in Canada. You need to spend like 150 to 200 grand in the States but if works it only takes months. If you have the resource you definitely don't want to overlook this option.

 

[johnsmit]

No I don't have any resources..was considering doing on line fund raising..but That would just be to get by when I can't work any more because I will be disabled at some point as long as this keeps growing and matastiseies.
It has been over a yr since it was noticeable and and over
6 month from when I first went to the doctor.
Going to have it evaluated again for operation on..but they will have to do a PET scan and blood work another test be for they proceed.
I honestly do not think being cut up and disfigured will giving me any longer to live ..and it will make what life I have just a living hell
I fig I am just wasting my time and theirs doing that.

They are not offering any thing just pelative care and counceling .They will also help me get some financial assistance through CPP if possible .
And that's it.They will tell me to put everything in order and prepare to die.

I'll have to keep trying alternate stuff but all I can sayvitvthst natbevit slowed the cancer down. BUT I have no way of telling for sure.
Also I is getting expensive to do the canabisoil and try I gbotger immune booster stuff..especially if I have to cut my work back because of the efffects of the cancer .